National Lichen Sclerosus Support Group

PO Box 7600
Hungerford
RG17 7XD

Web: www.lichensclerosus.org

A sufferer of Lichen Sclerosus (LS) established the National Lichen Sclerosus Support Group (NLSSG) in 1997 with the following aims.

• To relieve the sense of isolation that patients experience as a result of diagnosis of LS.
• To offer support and current available information.
• To raise awareness of the disease, particularly amongst GPs.
• To produce information on specific topics (eg sexual difficulties) as well as general information and sharing experiences.

The NLSSG produces an information leaflet which includes sections on the following.

• Description of disease and symptoms.
• Diagnosis and treatment.
• Vulval care.
• LS and men; LS and children.
• Patient information from a Consultant Dermatologist.
• Information on the NLSSG.

Membership of the group is free but requires donations to cover costs. Please contact the above address for details.

Checked: April 2004