Lupus UK
St James House
Eastern Road
Romford
Essex
RM1 3NH
Tel: 01708 731251
Fax: 01708 731252
Web: www.lupusuk.com
Best time to phone would be: normal office hours.
LUPUS UK is the only national registered charity operating over 30 self-help groups throughout the UK for people with Lupus (Systemic Lupus Erythematosus or SLE). It provides advice and counselling on all aspects of the disease and publishes national and regional newsletters.
LUPUS UK aims:
- To establish and maintain a network of Regional Support Groups and Contacts throughout the UK.
- To provide welfare support for people with Lupus.
- To publicise Lupus through the press, radio and TV, magazine articles and all other possible resources.
- To provide advice and counselling to all Lupus sufferers.
- To arrange educational meetings and generally inform the medical and nursing professions on Lupus.
- To raise money for research and welfare support through national, regional and local fund-raising events.
- To publish a regular national magazine, "News & Views".
- To produce posters and other publicity material on Lupus.
- To promote the annual April Lupus Awareness Week
- To affiliate with other organisations whereby the voice of LUPUS UK teaches so many more.
Fund raising for lupus research and welfare support is an essential part of the charity's work.
A variety of factsheets and publications are available including:
- LUPUS A Guide for patients.
- LUPUS and Men.
- LUPUS and Pregnancy.
- Understanding LUPUS.
- Living with LUPUS.
- The LUPUS Book
Please contact Head Office for a full publications list and charges.
Checked: September 2004